Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis

Table 1 Study participant characteristics

Variable	Mean (SD)/Percentage
Age	M = 29.9 ± 9.7 years; Median = 26.5 years; Range = 18-70 years
Age of diagnosis	5.8 (± 10.1) years; (76%; n = 658) diagnosed at ≤ 5 years of age
% Male	46%
% Race
Caucasian	95%
African American	2%
Hispanic	2%
Other	1%
% Education Level ^a
Less than high school	5%
High school graduate	20%
Technical/Professional training	6%
Some college/college student	34%
College graduate	24%
Have/working on graduate degree	11%
% Marital Status
Single (not currently dating)	25%
Single (dating)	15%
Serious relationship	24%
Married	36%
% Disease Severity ^b
Normal (> 90 FEV₁ % predicted)	16%
Mild (70-90 FEV₁ % predicted)	24%
Moderate (40 - 69 FEV₁ % predicted)	29%
Severe (≤ 39 FEV₁ % predicted)	15%

Note. ^aPatients between 18-24 may not have the ability to have higher education level based on age. Education level thus represents the highest degree achieved to date. ^bDisease severity was unknown for 16% of the patients.

ISSN: 1471-2466