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Table 1 Study participant characteristics

From: Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis

Variable Mean (SD)/Percentage
Age M = 29.9 ± 9.7 years; Median = 26.5 years; Range = 18-70 years
Age of diagnosis 5.8 (± 10.1) years; (76%; n = 658) diagnosed at ≤ 5 years of age
% Male 46%
% Race  
   Caucasian 95%
   African American 2%
   Hispanic 2%
   Other 1%
% Education Level a  
   Less than high school 5%
   High school graduate 20%
   Technical/Professional training 6%
   Some college/college student 34%
   College graduate 24%
   Have/working on graduate degree 11%
% Marital Status  
   Single (not currently dating) 25%
   Single (dating) 15%
   Serious relationship 24%
   Married 36%
% Disease Severity b  
   Normal (> 90 FEV1 % predicted) 16%
   Mild (70-90 FEV1 % predicted) 24%
   Moderate (40 - 69 FEV1 % predicted) 29%
   Severe (≤ 39 FEV1 % predicted) 15%
  1. Note. aPatients between 18-24 may not have the ability to have higher education level based on age. Education level thus represents the highest degree achieved to date. bDisease severity was unknown for 16% of the patients.
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BMC Pulmonary Medicine

ISSN: 1471-2466

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