From: Caregivers' perceived adequacy of support in end-stage lung disease: results of a population survey
Respondents who had someone close to them die from an expected death in the 5 years before responding who provided care for someone with ... | ||||||
---|---|---|---|---|---|---|
...end-stage respiratory disease | ... a diagnosis other than end-stage respiratory disease | |||||
Caregivers (respondents) | ||||||
Factors that do not change as caring is relinquished | ||||||
Factor | Fraction^ | % | Fraction^ | % | p value## | |
Gender - male | 55/145 | 37.9 | 501/1358 | 36.9 | 0.806 | |
Age of respondent - 65+ | 31/145 | 21.4 | 275/1359 | 20.2 | 0.745 | |
Educational attainment - beyond school | 70/146 | 47.9 | 730/1358 | 53.8 | 0.181 | |
Country of birth - non-English speaking | 8/146 | 5.5 | 147/1358 | 10.8 | 0.044# | |
Relationship to the deceased - spouse | 20/145 | 13.8 | 172/1358 | 12.7 | 0.699 | |
Factors that may change as caring is relinquished | ||||||
Household income ≤AU$60, 000#### | 92/128 | 71.9 | 777/1180 | 65.8 | 0.170 | |
Current work status - full or part time* | 61/122 | 50.0 | 638/1157 | 55.1 | 0.278 | |
Region of residence - metropolitan | 86/145 | 59.3 | 918/1358 | 67.6 | 0.044 | |
SEIFA index -lowest 60% | 73/146 | 50.0 | 600/1358 | 44.2 | 0.179 | |
Caring characteristics | ||||||
Level of care - day-to-day | 65/145 | 44.8 | 603/1358 | 44.4 | 0.922 | |
Length of care - ≤ 1 year ### | 52/101 | 51.5 | 518/919 | 56.4 | 0.348 | |
Had enough support ### | 33/128 | 25.8 | 326/1152 | 28.3 | 0.548 | |
Post-care factors | ||||||
Time since death. ≤ 2 years | 84/144 | 58.3 | 768/1351 | 56.8 | 0.732 | |
Moving on with life - able to move on | 110/146 | 75.3 | 1089/1345 | 81.0 | 0.104 | |
Would care again - yes | 28/30 | 93.3 | 271/290 | 93.4 | 0.981 | |
Sought help for grief or wished they had - yes** | 22/69 | 31.9 | 215/551 | 39.0 | 0.250 | |
The deceased | ||||||
Age of the deceased > 65*** | 63/68 | 92.6 | 391/554 | 70.6 | 0.000 | |
Comfortable or very comfortable in the last 2 weeks of life* | 18/45 | 40.0 | 147/352 | 41.8 | 0.821 | |
Place of death - institution (hospital or hospice)** | 50/69 | 72.5 | 375/553 | 67.8 | 0.434 | |
Service factors | ||||||
Palliative care service use - yes | 56/146 | 38.4 | 841/1358 | 61.9 | 0.000 |