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Table 1 The questions used to assess stigma, which were embedded amongst other questions on respiratory problems and health in general.

From: Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma

These are questions about other effects that breathing or respiratory problems may have. If you do not have a particular problem then please tick 'Not applicable'.

Definitely agree

Agree somewhat

Disagree somewhat

Definitely disagree

N/A

Factor loading

My coughing or breathing is embarrassing in public

37.3% (25/67)

37.3% (25/67)

13.4% (9/67)

11.9% (8/67)

N = 4

.530

My breathing problem is a nuisance to my family, friends, or neighbours

15.6% (10/64)

17.2% (11/64)

18.8% (12/64)

48.4% (31/64)

N = 7

.478

I have sometimes felt I had to hide from other people the fact that I had PCD

25.4% (17/67)

19.4% (13/67)

10.4% (7/67)

44.8% (30/67)

N = 4

.880

I have sometimes felt embarrassed in public because of having PCD

21.2% (14/66)

28.8% (19/66)

12.1% (8/66)

37.9% (25/66)

N = 5

.818

I have sometimes avoided situations where people might find out that I had PCD

23.1% (15/65)

13.8% (9/65)

6.2% (4/65)

56.9% (37/65)

N = 6

.863

I have sometimes felt worried about other people's reaction to PCD

21.2% (14/66)

24.2% (16/66)

13.6% (9/66)

40.9% (27/66)

N = 5

.866

How does PCD affect your daily life?

True

False

  

N/A

Factor loading

I sometimes feel it makes people reject me

18.8% (13/69)

81.2% (56/69)

  

N = 2

.586

Sometimes it makes it more difficult for me to make friends

16.2% (11/68)

83.8% (57/68)

  

N = 3

.592

It is sometimes difficult telling people about my condition

43.5% (30/69)

56.5% (39/69)

  

N = 2

.860

Sometimes I prefer not to let other people know that I have PCD

59.4% (41/69)

40.6% (28/69)

  

N = 2

.710

Sometimes it is difficult having a rare and unusual condition

56.5% (39/69)

43.5% (30/69)

  

N = 2

.622

  1. The descriptive statistics are taken from our previous paper [15], and show the percentage of individuals giving each of the answers, along with the loading of each measure on the single factor that was extracted in that analysis. NA = "not applicable"