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Table 1 The questions used to assess stigma, which were embedded amongst other questions on respiratory problems and health in general.

From: Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma

These are questions about other effects that breathing or respiratory problems may have. If you do not have a particular problem then please tick 'Not applicable'. Definitely agree Agree somewhat Disagree somewhat Definitely disagree N/A Factor loading
My coughing or breathing is embarrassing in public 37.3% (25/67) 37.3% (25/67) 13.4% (9/67) 11.9% (8/67) N = 4 .530
My breathing problem is a nuisance to my family, friends, or neighbours 15.6% (10/64) 17.2% (11/64) 18.8% (12/64) 48.4% (31/64) N = 7 .478
I have sometimes felt I had to hide from other people the fact that I had PCD 25.4% (17/67) 19.4% (13/67) 10.4% (7/67) 44.8% (30/67) N = 4 .880
I have sometimes felt embarrassed in public because of having PCD 21.2% (14/66) 28.8% (19/66) 12.1% (8/66) 37.9% (25/66) N = 5 .818
I have sometimes avoided situations where people might find out that I had PCD 23.1% (15/65) 13.8% (9/65) 6.2% (4/65) 56.9% (37/65) N = 6 .863
I have sometimes felt worried about other people's reaction to PCD 21.2% (14/66) 24.2% (16/66) 13.6% (9/66) 40.9% (27/66) N = 5 .866
How does PCD affect your daily life? True False    N/A Factor loading
I sometimes feel it makes people reject me 18.8% (13/69) 81.2% (56/69)    N = 2 .586
Sometimes it makes it more difficult for me to make friends 16.2% (11/68) 83.8% (57/68)    N = 3 .592
It is sometimes difficult telling people about my condition 43.5% (30/69) 56.5% (39/69)    N = 2 .860
Sometimes I prefer not to let other people know that I have PCD 59.4% (41/69) 40.6% (28/69)    N = 2 .710
Sometimes it is difficult having a rare and unusual condition 56.5% (39/69) 43.5% (30/69)    N = 2 .622
  1. The descriptive statistics are taken from our previous paper [15], and show the percentage of individuals giving each of the answers, along with the loading of each measure on the single factor that was extracted in that analysis. NA = "not applicable"