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Table 2 Demographic details of participants in matched pairs, along with stigma scores from the questionnaire in 2003 and ratings of stigma by the interviewer in 2005.

From: Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma

Participant code Sex Age at interview Age at diagnosis Situs inversus Stigma score based on questionnaire in 2003 (higher scores indicate higher stigma) Stigma rating of interviewer in 2005. 1 indicates low perceived stigma and 4 indicates high perceived stigma.
1A F 54 32 Yes -.46 1
1B F 57 23 Yes 1.61 4
2A F 65 58 Yes -.37 2
2B F 61 50 Yes 2.05 3
3A F 49 34 Yes -.08 1
3B F 42 22 Yes 1.91 4
4B F 53 43 No -.18 1
4A F 51 36 No 1.51 4
5A F 27 11 No -.87 1
5B F 32 10 No 1.16 3
7B M 42 35 No -.73 1
7A M 65 56 No 2.05 4
  1. Within each pair the low stigma individual based on the questionnaire is shown in italics and the high stigma individual in bold. It should be noted that individuals were randomly allocated as A or B using random number tables.