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Table 3 Clinical details of participants in matched pairs, assessed by questionnaire in 2003.

From: Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma

  St George's Respiratory Questionnaire SF-36 component scores
Participant Symptoms Activity Impact Physical Mental
1A 54 72 63 47 56
1B 39 88 69 38 33
2A 11 88 73 19 52
2B 32 50 43 26 32
3A 64 81 77 46 45
3B 29 81 74 57 28
4B 11 38 57 32 58
4A 7 34 42 18 35
5A 79 59 95 56 41
5B 39 78 70 42 31
7B 39 69 98 60 28
7A 7 78 61 27 47
High stigma: mean (SD) 42.9 (28.0) 67.7 (17.8) 77.0 (16.4) 43.1 (15.3) 46.5 (11.2)
Low stigma: mean (SD) 25.6 (14.9) 68.2 (21.0) 59.9 (14.3) 34.7 (14.0) 34.5 (6.8)
Paired t-test t (5) = 1.83 t (5) = -.047 t (5) = 2.53 t (5) = 1.30 t (5) = 1.84
  p = .126 p = .964 p = .053 p = .249 p = .125
  1. Within each pair the low stigma individual based on the questionnaire is shown in italics and the high stigma individual in bold.