All Respondentsa N = 114 | Adult Programs N = 57 | Affiliate Programs N = 12 | Pediatric Programs N = 43 | |
---|---|---|---|---|
n (%) | n (%) | n (%) | n (%) | |
Tissue diagnosis of cancer | 74 (65%) | 39 (68%) | 9 (75%) | 26 (61%) |
CF-related ESRD requiring dialysis | 50 (44%) | 23 (40%) | 6 (50%) | 21 (49%) |
Inadequate nutritional status (e.g. BMI <18) | 33 (29%) | 18 (32%) | 4 (33%) | 9 (21%) |
CF-related liver cirrhosis | 18 (16%) | 13 (23%) | 0 | 5 (12%) |
CF-related diabetes, poorly controlled | 18 (16%) | 11 (19%) | 2 (17%) | 5 (12%) |
Depression, anxiety | 10 (9%) | 3 (5%) | 1 (8%) | 6 (14%) |
Pulmonary hypertension | 1 (1%) | 0 | 1 (8%) | 0 |
Osteoporosis | 1 (1%) | 1 (2%) | 0 | 0 |
CF-related sinus disease, extensive | 0 | 0 | 0 | 0 |
Gastro-esophageal reflux disease | 0 | 0 | 0 | 0 |
Other (free text response) | 31 (27%) | 19 (33%) | 3 (25%) | 9 (21%) |
Skipped questionb | 12 (11%) | 5 (9%) | 0 | 7 (16%) |