From: Knowledge gaps in patients with COPD and their proxies
Correct answers | Incorrect answers | ‘Do not know’ | |||||
---|---|---|---|---|---|---|---|
Patients with COPD | Resident proxies | Patients with COPD | Resident proxies | Patients with COPD | Resident proxies | p-value | |
COPD in general | |||||||
1. COPD means Chronic Obstructive Pulmonary Disease. (T) | 86.1% | 82.4% | 2.6% | 2.6% | 11.3% | 15.0% | 0.561 |
2. The amount of air that can be blown out quickly (the FEV 1 ) is reduced in people with COPD. (T) | 59.3% | 51.8% | 3.1% | 2.6% | 37.6% | 45.6% | 0.282 |
3. Smoking is the most important cause of COPD. (T) | 80.4% | 77.7% | 11.3% | 10.9% | 8.2% | 11.4% | 0.581 |
4. Everyone who has COPD is eligible for lung transplantation. (F) | 53.1% | 59.6% | 4.6% | 3.6% | 42.3% | 36.8% | 0.428 |
Living with COPD | |||||||
5. Anxiety and sadness have a negative influence on the quality of life of people with COPD. (T) | 63.4% | 68.4% | 16.0% | 10.9% | 20.6% | 20.7% | 0.327 |
6. Support and understanding for my lung disease from people in my home environment (for example: partner, children and friends) is important. (T) | 94.8% | 96.9% | 1.0% | 0.5% | 4.1% | 2.6% | 0.592 |
7. A lung patient who attends the psychologist during pulmonary rehabilitation is insane. (F) | 67.5% | 68.9% | 4.6% | 5.7% | 27.8% | 25.4% | 0.796 |
Functioning with COPD | |||||||
8. My lung function determines which activities I will be able to do at home. (F) | 17.0% | 7.8% | 71.1% | 82.4% | 11.9% | 9.8% | 0.013 |
9. A rollator could help a person with COPD to walk further. (T) | 69.6% | 59.6% | 9.8% | 19.7% | 20.6% | 20.7% | 0.019 |
10. During strenuous exercise (like climbing 2 stairs) it is better to rest once for a long time than several times for short periods. (F) | 36.1% | 29.0% | 38.7% | 47.2% | 25.3% | 23.8% | 0.203 |
11. Leaning forward and bracing with my arms can help to reduce breathlessness. (T) | 32.5% | 28.0% | 38.7% | 36.3% | 28.9% | 35.8% | 0.331 |
12. When I lift a heavy shopping bag I should try to breathe out. (T) | 54.6% | 54.4% | 20.6% | 23.8% | 24.7% | 21.8% | 0.663 |
COPD and medication | |||||||
13. The spacers of puffers should be wiped dry after rinsing. (F) | 62.4%* | 49.2% | 20.6% | 21.8% | 17.0%* | 29.0% | 0.010 |
14. Shaky hands are a possible side effect of bronchodilators. (T) | 38.1% | 35.8% | 15.5% | 6.7% | 46.4% | 57.5% | 0.011 |
15. I will reduce the risk of getting a chest infection by using my lung medication (“puffers”) correctly. (T) | 71.6% | 68.9% | 12.4% | 14.5% | 16.0% | 16.6% | 0.797 |
Lung function and oxygen | |||||||
16. It is safe to use oxygen therapy while cooking with gas. (F) | 58.2% | 61.7% | 4.1% | 3.6% | 37.6% | 34.7% | 0.788 |
17. My lung function will change by using long-term oxygen therapy. (F) | 31.4% | 26.4% | 16.5% | 24.9% | 52.1% | 48.7% | 0.114 |
18. Breathlessness is always accompanied by low oxygen levels. (F) | 24.7% | 22.3% | 62.9% | 62.7% | 12.4% | 15.0% | 0.688 |
Exercising | |||||||
19. Exercising will improve my lung function. (F) | 9.8% | 7.3% | 83.0% | 87.0% | 7.2% | 5.7% | 0.532 |
20. After pulmonary rehabilitation I have to stay active in order to maintain my exercise tolerance. (T) | 91.8% | 94.3% | 0.5% | 0% | 7.7% | 5.7% | 0.437 |
21. Daily exercising with my arms and shoulders will make dressing and undressing harder. (F) | 76.3% | 66.3% | 11.9% | 15.0% | 11.9% | 18.7% | 0.082 |
22. It is better to avoid exercise because it will strain my lungs too much. (F) | 88.7% | 77.7% | 6.7% | 12.4% | 4.6% | 9.8% | 0.015 |
Phlegm | |||||||
23. I should contact my doctor or nurse when the colour of my phlegm changes (from white to yellow or green) and I experience more symptoms. (T) | 88.7% | 89.1% | 1.0% | 0.5% | 10.3% | 10.4% | 0.848 |
24. Phlegm is harmful when swallowed. (F) | 43.8% | 48.2% | 21.1% | 22.8% | 35.1% | 29.0% | 0.444 |
General health | |||||||
25. A “chronic disease” means a disease which heals well. (F) | 83.5% | 86.5% | 9.3% | 6.2% | 7.2% | 7.3% | 0.529 |
26. Daily intake of 2 pieces of fruit is recommended. However, 1 piece of fruit may be replaced by 1 glass of orange juice. (T) | 52.6% | 59.9%† | 21.1% | 20.8%† | 26.3% | 19.3%† | 0.222 |
27. I can improve my exercise tolerance by strength training. (T) | 89.7% | 88.1% | 3.1% | 1.6% | 7.2% | 10.4% | 0.349 |
28. Fresh vegetables are better for my health than frozen or canned vegetables. (F) | 38.7% | 35.8% | 51.5% | 57.0% | 9.8% | 7.3% | 0.477 |
29. Regular exercises and the intake of milk products will reduce the risk for osteoporosis. (T) | 79.4%* | 90.7% | 5.7% | 1.6% | 14.9% | 7.8% | 0.006 |
30. Stopping smoking reduces the risk of heart disease. (T) | 93.3% | 91.2% | 1.5% | 3.6% | 5.2% | 5.2% | 0.434 |
31. Fat is the most important nutrient to build up muscles. (F) | 51.5% | 58.0% | 15.5% | 14.5% | 33.0% | 27.5% | 0.411 |
32. When being overweight you have an increased risk for lifestyle diseases, like diabetes and cardiovascular disease. (T) | 91.8% | 93.3% | 1.0% | 3.1% | 7.2% | 3.6% | 0.114 |
33. Osteoporosis increases the risk of breaking my hip. (T) | 90.7% | 92.7% | 1.5% | 0.5% | 7.7% | 6.7% | 0.558 |
34. ‘Self-management’ means that I do not have to visit a doctor. (F) | 83.5% | 72.0% | 3.1% | 5.7% | 13.4% | 22.3% | 0.025 |