Table 1 A selection of available online bronchiectasis patient information resources (English language)
Resource | Provider | Description | User Co-production | Recognised healthcare service provider, academic organisation or charity? | Information in video format? |
|---|---|---|---|---|---|
Produced by a multidisciplinary bronchiectasis team and patients and carers based at Newcastle University and Newcastle upon Tyne Hospitals NHS Foundation Trust | Content and format based upon findings of qualitative research with patients and carers. Comprehensive information in text (13,000 words. Sub-sectioned so small, relevant portions of information visible at a time) plus images and multiple videos. Option to download PDF. Updated and available open access June 2017 | Yes. Co-produced with patients and carers and based upon prior research. | Yes | Yes | |
NHS Lothian and input from patients with bronchiectasis | Online information with input from patients (Approximately 3000 words plus written patient stories). Option to download PDF brochure. Last updated Jan 2015. | Yes. User input during development. | Yes | No | |
British Lung Foundation (BLF) | Online and booklet version available. Previously quite brief information about bronchiectasis (900 words). Revised June 2017 to include more comprehensive information in keeping with the resources used in the BRIEF study [108]. | User reviewers | Yes | No | |
http://www.nhs.uk/Conditions/Bronchiectasis/Pages/Diagnosis.aspx | U.K. National Health Service | Online information (3600 words). Lots of text on the page to scroll through plus extra items alongside. Last updated 2015 | Not specified | Yes | No |
Patient (patient and professional information provider) | Online text. Multiple adverts alongside. Includes discussion forum. Last Updated 2014 | Not specified | No | No | |
Written by a patient with bronchiectasis | Patient’s perspective with input from professionals. Not text-heavy. No Adverts. | Yes | No | No | |
National Heart Lung and Blood Institute (USA) | Well organised sections. High volume of information and text (4500 words). No Adverts. Last updated 2014 | Not specified | Yes | No | |
Run by patients with bronchiectasis | Discussion forum and online community rather than an information resource. | Yes | No | No | |
Wikipedia | Text and images. Last edited April 2017 | Not specified | No | No | |
US National Library of Medicine | Concise information (570 words). Last updated April 2017. | Not specified | Yes | No | |
British Medical Journal | Concise information (1200 words) no adverts. All text format, no pictorial content. Last updated October 2015. | Not specified | Yes | No | |
BLF online presentation and question and answers with consultant and physiotherapist. | YouTube video of presentation slides and audio. Patient questions and answers. Published 2012. | Not specified | Yes | Yes | |
Boots, Pharmacy/ WebMD. Last reviewed July 2015. | Online text information (1300 words). Lots of adverts on the page. Last updated July 2015. | Not specified | No (*) | No |