Table 3 Key Learning points and Patient Perspective
Patient Perspective “When I was diagnosed with bronchiectasis in my late forties, it did not affect me day to day and I continued to work, raise my family and have an active social life. However, since being diagnosed with Mycobacterium Abscessus and Vasculitis, I have struggled with tiredness and progressive shortness of breath especially when exerting myself. I am no longer as active as I wish to be, in particular I struggle to keep up with my toddler grand-daughter and make it around the golf course. However, I make the effort to continue to take light exercise every day by meeting friends for coffee, going shopping and short walks when the weather permits.” Learning Points • NTM Pulmonary disease is increasing in prevalence and should be screened for in in at risk groups. NTM-PD should also be considered if appropriate radiological appearances and /or symptoms develop in these groups. • Treatment regimens are toxic and difficult to tolerate and therefore timing of treatment and goals of treatment are important as well as clear communication with patients in this regard • With increases in therapies which impair immunity the rates of NTM-PD in these groups may continue to rise • Vasculitis triggered by NTM is a rare but significant complication of NTM and this is the first reported case of this being due to M.Abcessus. • Balancing effective immunosuppression with active treatment for infection is challenging and requires specialist expertise and collaborative working between specialist services. |