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Table 1 Characteristics of participants and their children with cystic fibrosis (quantitative phase)

From: Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study

Parents (N = 88)

Age range in years, n (%)

18–25

8 (9.2%)

26–30

17 (19.5%)

31–35

31 (35.6%)

36–40

18 (20.7%)

41–45

9 (10.3)

46 and older

4 (4.6%)

Female, n (%)

75 (86.2%)

Educationc, n (%)

Some high school

4 (4.7%)

Graduated high school

16 (18.6%)

Some college

29 (33.7%)

Graduated college

30 (34.9%)

Graduate school

7 (8.1%)

Multiple children with CF, n (%)

17 (19.5%)

Distance to CF Center in miles, med (IQR), n

43.0 (19.3–90.7), 87

CES-D, med (IQR), n

17 (9–26), 81

DUREL, med (IQR), n

10.5 (7–14), 86

Negative Spiritual Coping, med (IQR), n

1 (0–3.5), 84

Self-efficacy, median (IQR), n

1071 (989.5–1097.3), 84

Adherencea

Aerosolized Medications, median (IQR), n

0.8 (0.5–1.1), 68

Airway Clearance, median (IQR), n

0.8 (0.5–1), 87

Children with CFb

Age in years, med (IQR), n

4.9 (2.4–9.6), 88

BMI percentile, median (IQR), n

58 (35–81), 87

Exacerbations in prior year, n (%)

0

46 (52.3%)

1

20 (22.7%)

2 or more

22 (25%)

  1. Abbreviations: BMI Body Mass Index, CES-D Center for Epidemiologic Studies Depression Scale, DUREL Duke University Religion Index
  2. aNot all subjects were prescribed aerosolized medications or airway clearance therapy during study; brepresents number of unique children with CF to account for instances in which both parents participated in the study; cused as a proxy for socioeconomic status