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Table 1 Characteristics of participants and their children with cystic fibrosis (quantitative phase)

From: Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study

Parents (N = 88)
Age range in years, n (%)
18–258 (9.2%)
26–3017 (19.5%)
31–3531 (35.6%)
36–4018 (20.7%)
41–459 (10.3)
46 and older4 (4.6%)
Female, n (%)75 (86.2%)
Educationc, n (%)
Some high school4 (4.7%)
Graduated high school16 (18.6%)
Some college29 (33.7%)
Graduated college30 (34.9%)
Graduate school7 (8.1%)
Multiple children with CF, n (%)17 (19.5%)
Distance to CF Center in miles, med (IQR), n43.0 (19.3–90.7), 87
CES-D, med (IQR), n17 (9–26), 81
DUREL, med (IQR), n10.5 (7–14), 86
Negative Spiritual Coping, med (IQR), n1 (0–3.5), 84
Self-efficacy, median (IQR), n1071 (989.5–1097.3), 84
Adherencea
Aerosolized Medications, median (IQR), n0.8 (0.5–1.1), 68
Airway Clearance, median (IQR), n0.8 (0.5–1), 87
Children with CFb
Age in years, med (IQR), n4.9 (2.4–9.6), 88
BMI percentile, median (IQR), n58 (35–81), 87
Exacerbations in prior year, n (%)
046 (52.3%)
120 (22.7%)
2 or more22 (25%)
  1. Abbreviations: BMI Body Mass Index, CES-D Center for Epidemiologic Studies Depression Scale, DUREL Duke University Religion Index
  2. aNot all subjects were prescribed aerosolized medications or airway clearance therapy during study; brepresents number of unique children with CF to account for instances in which both parents participated in the study; cused as a proxy for socioeconomic status