Table 2 Network changes. Network Changes at Time 2 = 3 months post intervention (n = 27–3 dropped out)
From: Findings from a pilot randomised trial of a social network self-management intervention in COPD
Baseline | Extending Networks | Network engagement | Â | Â | |||||
|---|---|---|---|---|---|---|---|---|---|
Study Participa nt Number | Type of network At Baseline | Additional new activities | Type of network at 3 months follow up | Online | Reflection on existing support | Increased contact with existing groups/people | Additional new network members | Change within network Score | |
002 | Family centred | 0 | family Centred | 0 | 1 | 1 | 1 | Addition of less frequent contact with distance relatives and a new close friend, seen at least once a week. | 3/5 |
003 | Family Centred | 0 | Declined to repeat the social circles | 0 | 0 | 0 | 0 | n/a | 0/5 |
005 | Very Small network (4 members only) | 0 | Very Small network (4 members only) | 0 | 0 | 0 | 0 | Very severe COPD and hospitalised during the study. | 0 |
008 | Small (8 members) | 0 | Small (8 members) | 0 | 0 | 0 | 0 | Very severe COPD and hospitalised during the study. | 0 |
009 | Small (8 members) | 0 | Friend supported | 0 | 1 | 1 | 1 | 4 additional network members, greater involvement with the church, reduction in frequency of seeing health providers. | 3/5 |
014 | Family centred (18 members) | 0 | Family centred (18 members) | 0 | 0 | 0 | 0 | Carer or her grandchildren, no capacity to diversify. | 0 |
015 | Very small | 0 | Very small | 0 | 0 | 0 | 0 | Did not wish to diversify. | 0 |
018 | Diverse | 0 | Diverse | 0 | 0 | 0 | 0 | Already diverse. | 0 |
019 | Diverse | 0 | Diverse | 0 | 1 | 1 | 1 | Movement post intervention – 2 people left the group, 2 people joined, 3 people became closer and more valued. More value and time attributed to groups. | 3/5 |
021 | Very Diverse | 0 | Very diverse | 0 | 0 | 0 | 0 | No movement already very diverse network | 0 |
022 | Family Centred | 0 | Friend Supported | 0 | 1 | 1 | 0 | Valued friends became closer as their support was helpful. | 2/5 |
025 | Very small | 1 | Diverse | 0 | 1 | 0 | 0 | Joined 3 weekly health related groups | 2/5 |
027 | Diverse | 0 | Diverse | 0 | 1 | 0 | 0 | Maintained groups and friends- but saw less of her daughter and son in law | 1/5 |
030 | Family Centred | 1 | Diverse | 0 | 1 | 1 | 1 | Addition of 3 more friends/ neighbours and joined 2 groups. | 4/5 |
033 | Friend centred | 1 | Diverse | 0 | 1 | 1 | 0 | Increased number of groups and group frequency | 3/5 |
037 | Family supported | 0 | Declined follow up | 0 | 0 | 0 | 0 | n/a | 0 |
040 | Family Centred | 0 | Family centred | 0 | 0 | 0 | 0 | No change- had been unwell in the past 3 months since GENIE | 0 |
041 | Family and Friend Centred | 0 | Family and Friend Centred | 0 | 0 | 0 | 0 | Declined to discuss at follow up. | 0 |
043 | Small | 1 | Family and Friend Supported | 0 | 1 | 1 | 0 | Increase in regular friends visiting, and joined an exercise group. | 3/5 |
045 | Family Centred | 0 | Declined follow up | 0 | 0 | 0 | 0 | n/a | 0 |
047 | Family Centred | 0 | Family Centred | 0 | 0 | 0 | 0 | No change as admission and been unwell over the 3 months follow up period. | 0 |
050 | Small | 1 | small | 1 | 1 | 0 | 0 | However, this person liked to have a small network due to social anxiety and supported the setup of groups for others and joined a new exercise group | 3/5 |
052 | Friend Centred | 0 | Friend Centred | 0 | 1 | 1 | 0 | No change – movement in friends – but within the existing network. | 2/5 |
053 | Friend Centred | 0 | Friend Centred | 0 | 1 | 1 | 0 | Increased health engagement with services and decreased family reliance, however remained in a friend centric network. | 2/5 |
055 | Family Centred | 0 | Family Centred | 0 | 0 | 0 | 0 | Awaiting lung transplant, currently reliant on family. | 0 |
058 | Friend and family supported | 1 | Diverse | 0 | 1 | 1 | 0 | Many peripheral friends and addition of 2 health related groups | 3/5 |
060 | Friend Centred | 0 | Diverse | 0 | 1 | 1 | 1 | Increase of frequency of group meeting and addition of 2 friends | 3/5 |