Table 3 Characteristics of the patients and informal caregivers
Characteristics of patients (n = 9) | Characteristics of informal caregivers (n = 5) | |
|---|---|---|
Relation to patient | ||
Partner, n (%) | 5 (100) | |
Age range in years (mean) | 57–83 (70) | |
Gender, n (%) | ||
Women | 3 (33) | 3 (60) |
Men | 6 (67) | 2 (40) |
Year of diagnosis, range | 2013–2019 | |
Current IPF treatment, n (%) | ||
Pirfenidone | 5 (56) | |
Nintedanib | 4 (44) | |
Switch between both anti–fibrotic drugs, n | 1 | |
Time between diagnosis and initiation anti-fibrotic drug, median in days (IQR) | 74 (99) | |
Oxygen use, n | 1 | |
FVC-value (%pred), mean (SD) | 80 (20,6) | |
DLco-value (%pred), mean (SD) | 52,9 (12,3) | |
Education level, n (%) | ||
Lower secondary school finished | 0 | 1 (20) |
Higher secondary school finished | 4 (45) | 2 (40) |
Continuing vocational training | 2 (22) | 1 (20) |
Bachelors or Masters | 3 (33) | 1 (20) |
Employment status, n (%) | ||
Employed | 2 (22) | 2 (40) |
Retired | 7 (78) | 3 (60) |