Table 3 Unmet needs

Social and familial life

 Family

2

0

 Couple

3

0

 Children

2

0

 Friends

3

0

 Romantic encounter

1

0

 Risky driving

2

0

 To have a child

8

4

 To discuss of specific illness

1

0

Professional life

 Study/job

9

2

 Internship abroad

1

1

 Sick leave

2

1

 Social rights

2

1

 Revenues

3

0

 Mutual insurances

4

2

 Transports

3

0

Sexual life

 Libido

4

0

 Body image

3

0

 Shortness of breath

4

0

 Contraception

1

0

 Comfortable positions

0

0

 Venereal disease

0

0

 Pain

1

0

Psychological feeling

 Mood

6

1

 Self-worth

2

1

 Self-efficacy

2

0

 Motivation

3

1

 Anxiety

2

0

 Lose interest

3

1

Symptoms related to the specific disease

 Pains

2

0

 Fatigue

10

4

 Sleep quality

2

1

 Bladder weakness

1

0

 Digestive gases

1

0

 Smelly stool odour

1

0

 constipation/diarrhea

4

1

 Cough

6

0

 Sputum

3

0

 Mycosis

1

1

Daily life organisation

 Daily shopping/housework

3

0

 Rest time

1

1

 Planning of occupations/nursing

1

0

 Hygiene

2

0

 Self-sufficiency

3

1

 Eating times

2

0

 Leisure

 Leisure activity

5

1

 Sports

8

1

 Costs

2

0

 Holidays

3

0

 Vacation abroad

4

1

Treatments

 Regularity

4

2

 Interruption

1

0

 Limitation

1

0

 Logistical supports/supply

1

0

 Efficacy

1

1

 Side effects

4

1

 Disease evolution/future

8

2

 Fertility treatment

3

2

 Transplantation

3

1

 Medical advances/research

6

3

Project

 Personal

4

1

 Professional

5

1

 Other

1

0

None domains marked

24

Domains considered to be unnecessary or repetitive

 Sports

1

 Shopping/housework

1

 Usual treatments

1