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Table 3 Unmet needs

From: Identifying specific needs in adult cystic fibrosis patients: a pilot study using a custom questionnaire

Domains Requested domains Prime domains
Social and familial life
 Family 2 4.0% 0 0.0%
 Couple 3 6.0% 0 0.0%
 Children 2 4.0% 0 0.0%
 Friends 3 6.0% 0 0.0%
 Romantic encounter 1 2.0% 0 0.0%
 Risky driving 2 4.0% 0 0.0%
 To have a child 8 16.0% 4 8.0%
 To discuss of specific illness 1 2.0% 0 0.0%
Professional life
 Study/job 9 18.0% 2 4.0%
 Internship abroad 1 2.0% 1 2.0%
 Sick leave 2 4.0% 1 2.0%
 Social rights 2 4.0% 1 2.0%
 Revenues 3 6.0% 0 0.0%
 Mutual insurances 4 8.0% 2 4.0%
 Transports 3 6.0% 0 0.0%
Sexual life
 Libido 4 8.0% 0 0.0%
 Body image 3 6.0% 0 0.0%
 Shortness of breath 4 8.0% 0 0.0%
 Contraception 1 2.0% 0 0.0%
 Comfortable positions 0 0.0% 0 0.0%
 Venereal disease 0 0.0% 0 0.0%
 Pain 1 2.0% 0 0.0%
Psychological feeling
 Mood 6 12.0% 1 2.0%
 Self-worth 2 4.0% 1 2.0%
 Self-efficacy 2 4.0% 0 0.0%
 Motivation 3 8.0% 1 2.0%
 Anxiety 2 4.0% 0 0.0%
 Lose interest 3 6.0% 1 2.0%
Symptoms related to the specific disease
 Pains 2 4.0% 0 0.0%
 Fatigue 10 20.0% 4 8.0%
 Sleep quality 2 4.0% 1 2.0%
 Bladder weakness 1 2.0% 0 0.0%
 Digestive gases 1 2.0% 0 0.0%
 Smelly stool odour 1 2.0% 0 0.0%
 constipation/diarrhea 4 8.0% 1 2.0%
 Cough 6 12.0% 0 0.0%
 Sputum 3 6.0% 0 0.0%
 Mycosis 1 2.0% 1 2.0%
Daily life organisation
 Daily shopping/housework 3 6.0% 0 0.0%
 Rest time 1 2.0% 1 2.0%
 Planning of occupations/nursing 1 2.0% 0 0.0%
 Hygiene 2 4.0% 0 0.0%
 Self-sufficiency 3 6.0% 1 2.0%
 Eating times 2 4.0% 0 0.0%
 Leisure
 Leisure activity 5 10.0% 1 2.0%
 Sports 8 16.0% 1 2.0%
 Costs 2 4.0% 0 0.0%
 Holidays 3 6.0% 0 0.0%
 Vacation abroad 4 8.0% 1 2.0%
Treatments
 Regularity 4 8.0% 2 4.0%
 Interruption 1 2.0% 0 0.0%
 Limitation 1 2.0% 0 0.0%
 Logistical supports/supply 1 2.0% 0 0.0%
 Efficacy 1 2.0% 1 2.0%
 Side effects 4 8.0% 1 2.0%
 Disease evolution/future 8 16.0% 2 4.0%
 Fertility treatment 3 6.0% 2 4.0%
 Transplantation 3 6.0% 1 2.0%
 Medical advances/research 6 12.0% 3 6.0%
Project
 Personal 4 8.0% 1 2.0%
 Professional 5 10.0% 1 2.0%
 Other 1 2.0% 0 0.0%
None domains marked 24 48.0%   
Domains considered to be unnecessary or repetitive
 Sports 1 2.0%   
 Shopping/housework 1 2.0%   
 Usual treatments 1 2.0%   
  1. Data are expressed as frequency (percentage)