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Table 3 Summary of endorsed symptom concepts

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with sarcoidosis-associated pulmonary hypertension (SAPH): a qualitative interview study

Concept Endorsement, n (%) “Most bothersome or severe” symptom, na
Shortness of breathb 11 (100) 9
Swelling in ankles or legsb 11 (100) 0
Fatigueb 10 (91) 0
Lack of energyb 9 (82) 0
Wheezing 9 (82) 0
Coughb 9 (82) 2
Skin issues 9 (82) 1
Rapid heartbeatb 9 (82) 1
Chest painb 8 (73) 0
Eye issues 8 (73) 2
Lightheadednessb 8 (73) 0
Non-chest pain 7 (64) 1
Heart palpitationsb 7 (64) 0
Chest tightnessb 6 (55) 0
Headache 3 (27) 1
Swelling in stomach areab 3 (27) 0
Other symptomsc 6 (55) 0
  1. PAH-SYMPACT™: Pulmonary Arterial Hypertension-Symptoms and Impact
  2. aParticipants could select more than one symptom
  3. bSymptom concepts included as items in the PAH-SYMPACT™
  4. cOther symptoms, each reported by one participant, were feeling of a lump in the throat/needing to clear the throat (congestion), legs feeling like they will “give out,” numbness in fingers, swelling in hands, problems urinating (due to sarcoidosis in kidneys), balance issues (due to sarcoidosis and pulmonary hypertension), seizures and Bell’s palsy symptoms (due to sarcoidosis in the brain and stress), heavy feeling in the chest/pressure on the chest (different than tightness or pain), weakness (general), weakness and pain in hands, and left side of body feels different (feels “not good”)