Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with sarcoidosis-associated pulmonary hypertension (SAPH): a qualitative interview study

Table 5 Summary of endorsed impact concepts

Concept	Endorsement, n (%)	Impact “most difficult to cope with,” n^a
Difficulty walking uphill/up stairs	11 (100)	2
Stairs	11 (100)	2
Hills^b	9 (82)	0
Daily activities overall	11 (100)	1
Housework^b	10 (91)	0
Running errands/shopping	2 (18)	0
Driving	3 (27)	0
Other daily activities	7 (64)	0
Ability to walk (general)	10 (91)	0
Walking quickly^b	5 (45)	0
Walking slowly^b	5 (45)	0
Walking on flat surface^b	7 (64)	0
Carrying things^b	10 (91)	1
Hobbies or social activities	9 (82)	1
Hobbies	9 (82)	0
Social activities	1 (9)	0
Work and volunteering	8 (73)	0
Dependence on others^b	7 (64)	3
Relationships	7 (64)	2
Mental functioning^b	7 (64)	1
Self-care activities^b	7 (64)	0
Sleep impacted	7 (64)	0
Running or exercise	6 (55)	0
Feeling frustrated or angry^b	5 (45)	0
Feeling worried or anxiety^b	4 (36)	1
Feeling sad or depression^b	4 (36)	1
Parenting or family impact	3 (27)	2
Feeling embarrassed	3 (27)	0
Other impacts^c	8 (73)	1^d

PAH-SYMPACT™: Pulmonary Arterial Hypertension – Symptoms and Impact; PH: pulmonary hypertension
^aParticipants could select more than one impact
^bImpact concepts included as items in the PAH-SYMPACT™
^cOther impacts, each reported by one participant unless otherwise specified, were talking or singing impacted (due to changed voice, difficulty talking with exertion) (n = 2), bone issues (fragile, “dead bone”) (n = 2), clothing or shoe fit from swelling (n = 2), knowing you will never be healthy, weight loss, and incontinence
^dKnowing you will never be healthy

ISSN: 1471-2466