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Table 5 Summary of endorsed impact concepts

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with sarcoidosis-associated pulmonary hypertension (SAPH): a qualitative interview study

Concept Endorsement, n (%) Impact “most difficult to cope with,” na
Difficulty walking uphill/up stairs 11 (100) 2
Stairs 11 (100) 2
Hillsb 9 (82) 0
Daily activities overall 11 (100) 1
Houseworkb 10 (91) 0
Running errands/shopping 2 (18) 0
Driving 3 (27) 0
Other daily activities 7 (64) 0
Ability to walk (general) 10 (91) 0
Walking quicklyb 5 (45) 0
Walking slowlyb 5 (45) 0
Walking on flat surfaceb 7 (64) 0
Carrying thingsb 10 (91) 1
Hobbies or social activities 9 (82) 1
Hobbies 9 (82) 0
Social activities 1 (9) 0
Work and volunteering 8 (73) 0
Dependence on othersb 7 (64) 3
Relationships 7 (64) 2
Mental functioningb 7 (64) 1
Self-care activitiesb 7 (64) 0
Sleep impacted 7 (64) 0
Running or exercise 6 (55) 0
Feeling frustrated or angryb 5 (45) 0
Feeling worried or anxietyb 4 (36) 1
Feeling sad or depressionb 4 (36) 1
Parenting or family impact 3 (27) 2
Feeling embarrassed 3 (27) 0
Other impactsc 8 (73) 1d
  1. PAH-SYMPACT™: Pulmonary Arterial Hypertension – Symptoms and Impact; PH: pulmonary hypertension
  2. aParticipants could select more than one impact
  3. bImpact concepts included as items in the PAH-SYMPACT™
  4. cOther impacts, each reported by one participant unless otherwise specified, were talking or singing impacted (due to changed voice, difficulty talking with exertion) (n = 2), bone issues (fragile, “dead bone”) (n = 2), clothing or shoe fit from swelling (n = 2), knowing you will never be healthy, weight loss, and incontinence
  5. dKnowing you will never be healthy