Skip to main content

Table 7 PAH-SYMPACT™ responses

From: Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with sarcoidosis-associated pulmonary hypertension (SAPH): a qualitative interview study

Item

Response, n (%)

 

Oxygen use

Yes

No

In the past 24 h…

  

 “Did you use oxygen?”

7 (64)

4 (36)

Item

Experienced

Not experienced

Symptoms

  

In the past 24 h…

  

 “How would you rate your shortness of breath?”

11 (100)

0

 “How would you rate your fatigue?”

10 (91)

1 (9)

 “How would you rate your lack of energy?”

9 (82)

2 (18)

 “How would you rate the swelling in your ankles or legs?”

8 (73)

3 (27)

 “How would you rate the swelling in your stomach area?”

4 (36)

7 (64)

 “How would you rate your cough?”

7 (64)

4 (36)

 “How would you rate your heart palpitations (heart fluttering)?”

5 (45)

6 (55)

 “How would you rate your rapid heartbeat?”

6 (55)

5 (45)

 “How would you rate your chest pain?”

6 (55)

5 (45)

 “How would you rate your chest tightness?”

7 (64)

4 (36)

 “How would you rate your lightheadedness?”

6 (55)

5 (45)

Impacts

  

In the past 7 days…

  

 “Were you able to walk slowly on a flat surface?”

7 (64)

4 (36)

 “Were you able to walk quickly on a flat surface?”

10 (91)

1 (9)

 “Were you able to walk uphill?”

11 (100)

0

 “Were you able to carry things?”

10 (91)

1 (9)

 “Were you able to do light indoor household chores?”

8 (73)

3 (27)

 “Were you able to wash or dress yourself?”

7 (64)

4 (36)

 “How much did you need help from others?”

7 (64)

4 (36)

 “Were you able to think clearly?”

7 (64)

4 (36)

 “How sad did you feel?”

10 (91)

1 (9)

 “How worried did you feel?”

9 (82)

2 (18)

 “How frustrated did you feel?”

10 (91)

1 (9)

  1. PAH-SYMPACT™, Pulmonary Arterial Hypertension-Symptoms and Impact