| Description | Number of items and scoring | MCID | Reference |
---|---|---|---|---|
K-BILD | Self-completed health status questionnaire with 3 domains: breathlessness and activities, psychological, and chest symptoms | 15 items Scores range from 0 to 100, with higher scores corresponding with better HRQOL | K-BILD total: 3.9 points | |
L-PF | Questionnaire consists of 2 modules. The impacts module evaluates impact on daily activities. The symptom module evaluates shortness of breath, cough, and fatigue | 44 items (Symptoms module: 23 items, Impacts module: 21 items) Scores range from 0 to 100, with higher scores indicating more impairment and lower HRQOL | L-PF Dyspnea: 6–7 points L-PF Cough: 4–5 points | |
EQ-5D-5L | Questionnaire with 5 domains; mobility, self-care, usual activities, pain/discomfort, and anxiety/depression, combined with a VAS on health status with a scale from 0 to 100 | 6 items Higher score indicates better health status | EQ-5D-5L range: 0.0050–0.054 points EQ-VAS range: 0.5–5.0 points | |
VAS | Symptom scores on cough, dyspnea, fatigue, and general wellbeing | 1 item per symptom Scores range from 0 to 10, with higher scores on cough, dyspnea and fatigue reflecting more severe symptoms. Higher score on general wellbeing indicates better wellbeing | Not available | [19] |
LCQ | Questionnaire on chronic cough | 19 items The overall score ranges from 3 to 21, with a higher score indicating a better cough-related health status | 1.3 points (IPF) | [36] |
FAS | Self-administered questionnaire about fatigue | 10 items The score ranges from 5 to 50 points, with a score of ≥ 22 points as cut-off for fatigue | 4 points or 10% change (sarcoidosis) | |
WPAI:GH | Questionnaire assessing impairment and productivity | 6 items Outcomes are expressed as impairment percentages, with higher numbers indicating greater impairment and less productivity | Not available | [39] |
GRoC | Global rating of change with regards to general well-being | 1 item 15-point self-report scale (from − 7 to 7). Higher score indicates a better health condition compared to the previous study visit | 5 points | [40] |