PROLONG: a cluster controlled trial to examine identification of patients with COPD with poor prognosis and implementation of proactive palliative care

Table 2 Overview of outcome measures per time point in the PROLONG study

Outcome measures	B	3 m	6 m	9 m	12 m	R
Questionnaires
Patient
CCQ	X
MRC dyspnea	X
SGRQ	X	X	X	X	X
McGill QOL	X	X	X	X	X
HADS	X	X	X	X	X
Illness understanding	X	X	X	X	X
Demographic questionnaire	X
Informal caregiver
SPPIC	X	X	X	X	X
HADS	X	X	X	X	X
Illness understanding	X	X	X	X	X
Demographic questionnaire	X
Lung specialist
CRF	X
Medical files
Number of hospitalisations of unexpected hospital admissions for AECOPD						X
Number of days of unexpected hospital admissions for AECOPD						X
Number of hospitalisations of unexpected ICU admissions for AECOPD						X
Number of days of unexpected ICU admissions for AECOPD						X
Are the choices of ACP documented in the medical file at baseline? (when yes/when no)						X
Are the choices of ACP documented in the medical file after one year or at time of death? (when yes/when no)						X
Did the patient die within one year after inclusion? (when yes/when no)						X
Date of death						X
Place of death (ICU/hospital/hospice/nursing home/at home)						X
Is preferred place of death known? (when yes/when no)						X
Has this wish come true? (when yes/when no)						X
Primary cause of death (pulmonary insufficiency/other cause)						X
Secondary cause of death (pulmonary insufficiency/other cause)						X
Did the patient have an unexpected hospital readmission for AECOPD within 8 weeks? (when yes/when no)						X
Date of first unexpected hospital readmission for AECOPD.						X

ISSN: 1471-2466