Table 1 Parameters collected to the FinnishIPF registry

Basic information

ID, gender, date of birth

Height, weight, body mass index

Smoking (pack years), occupation, exposures

Medical history, chronic illnesses

Medication

Diagnostic information

Symptoms, date of onset

Date of diagnosis

FVC(L), FVC % of predicted, FEV1(L), FEV1 % of predicted, DLCO/VA % of predicted and DLCO % of predicted

Chest X-ray

High resolution computed tomography of the lung (HRCT)

Biopsies, bronchoalveolar lavage samples, laboratory findings

6-minute walk test (meters)

Familial or sporadic IPF

Follow-up information

Changes in condition

FVC(L), FVC % of predicted, FEV1(L), FEV1 % of predicted, DLCO % of predicted, DLCO/VA % of predicted

Laboratory findings

High resolution computed tomography of the lung (HRCT)

6-minute walk test (meters)

Changes in medication

Hospitalization

Date of lung transplantation

Date of death, cause of death