Table 2 Diagnosis and management of alpha-1 antitrypsin deficiency by country (n, %)

Frequency of request AATD testing

N = 221

N = 155

N = 376

 Yes, regularly

51 (23.1)

17 (11)

68 (18.1)

 Yes, occasionally

118 (53.4)

79 (51)

197 (52.4)

 No

52 (23.5)

59 (38.1)

111 (29.5)

Number of test per month

N = 169

N = 96

N = 265

From physicians currently testing

 None

12 (7.1)

17 (17.7)

29 (10.9)

 1–5

121 (71.6)

74 (77.1)

195 (73.6)

 6–10

29 (17.2)

4 (4.2)

33 (12.5)

  >10

7 (4.1)

1 (1)

8 (3)

Profile of patients tested

N = 169

N = 96

N = 265

From physicians currently testing

 All patients with COPD

30 (17.8)

12 (12.5)

42 (15.8)

 COPD <45 years

140 (82.8)

83 (86.5)

223 (84.2)

 Relatives AATD patients

144 (85.2)

81 (84,4)

225 (84.9)

 Asthma

25 (14.8)

14 (14.1)

39 (14.7)

 Bronchiectasis

89 (52.7)

45 (46.9)

134 (50.6)

 Other conditions

13 (7.7)

13 (13.5)

26 (9.8)