Table 2 Lead questions of the interviews
Topic | Lead questions patient interviews | Lead questions HCPs interviews |
|---|---|---|
Introductory question | Can you briefly tell us how and where you got the diagnosis of IPF? | Can you give a short description of the current disease management program and what your role is? |
IPF care/trajectory at UZ Leuven | How do you feel about the extent to which you are involved in your care or about the decisions about your care? Can you give us a good and a lesser good experience you had with the ILD/IPF team or with your care? How do you experience the communication with the HCPs? Would you be willing to use for instance an application on your phone or a platform on the internet to support the management of your disease? What is your opinion about filling in questionnaires? Would you like to discuss your results of the questionnaires with the HCP? How is the communication with your general practitioner? | What do you think about the organisation of the multidisciplinary meeting for the diagnosis of IPF? What do you do to support patients in their treatment? What do you do to actively involve patients in their care? Do you use self-management strategies? What do you think about the use of eHealth in the management of IPF patients? What do you think about the use of patient-reported outcomes in the management of patients? How do you engage in discussions regarding advanced-care planning or end-of-life care? How do you experience the communication with your patient? What is your opinion about the communication and collaboration with external parties, such as for instance general practitioners? |
Living and coping with IPF | What does it mean for you to live with IPF in everyday life? What do you do to manage your disease? How do you stay physically active? Who can you turn to if you need support or help? Do you involve your friends or family? | |
Strengths, weaknesses, opportunities and threats of the current disease management program | What are future challenges in the care for patients with IPF? What do you think are the main strengths of the current disease management program? What would you recommend in order to optimise the content and structure of the disease management program? |