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Table 1 Summary of included research studies

From: Systematic review of effectiveness and quality assessment of patient education materials and decision aids for breathlessness

Study

Country

Setting

Design

Participant

Intervention

Comparator

Outcome Measures

RoB

Thomas et al. [23]

UK

Primary Care/General Practice Clinic

RCT (3 arms)

Asthma patients

2 intervention arms:

Self-guided intervention (DVD, booklet),

Face to face physiotherapist-delivered breathing retraining programme

Usual care

AQLQ (short version)

Low

Howard et al. [24]

UK

Primary Care/General Practice Clinic

RCT

COPD patients

COPD manual including in-person cognitive behavioural intervention

British Lung Foundation Information Booklet

HADS for Anxiety and Depression, CRQ scores

Low

Qian et al. [26]

Australia

Hospital

Pre-Post study

COPD patients with refractory breathlessness despite optimal disease‐directed care, with a mMRC score of 3–4

Breathlessness pack (hand‐held fan, information leaflets and an individualized breathlessness plan) Where applicable, this plan included details regarding the correct use of domiciliary oxygen therapy and/or opioids for breathlessness

None

Dyspnea Severity (mMRC), Quality of life, Qualitative Interviews

High

El-Gendy, [25]

Saudi Arabia

Hospital

Pre-Post study

Male adult COPD patients diagnosed and identified as GOLD stage II and III who were clinically stable

Educational program, using videos and brochures adapted from Saudi guidelines for the diagnosis and management of COPD

None

Dyspnea Severity (not mMRC)

High

Apps et al. [27]

UK

Primary Care/General Practice Clinic

Pre-Post study

COPD patients with a FEV1/FVC ratio of < 70% and mMRC score of 2–5

COPD manual (176 pages) comprising of an exercise program, education topics with goal-setting text, case studies for peer modelling, and activities to encourage problem solving and support behaviour change

None

Dyspnea Severity (not mMRC)

High

  1. *AQLQ asthma quality of life questionnaire, CTP coaching by telephone program, FEV1 forced expiratory volume in 1 s, FVC forced vital capacity, HF-SSS, mMRC modified medical research council breathlessness scale, NYHA New York heart association, RoB risk of bias