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Table 2 Perceived health-related value of study results

From: “It's a cause I believe in”: factors motivating participation and engagement in longitudinal, respiratory-focused research studies

Qualitative Theme

Exemplar Quote

Personal value:

one’s own health

[interested in research that informs] “how to take care of myself better. What can I do to improve my overall health.” – 34yo W,F

“I'd be more than happy to know how this modern world [such as climate change] is affecting my health.” – 31yo W,M

Personal value: relatives/family members

“If a family member had lung disease, and they wanted people to participate in a research study for lung disease, I would happily do that to show my support for the loved one.” – 27yo W,M

Societal value:

Broad scientific value to the community

“people live longer now than they used to because…we've eradicated a lot of diseases and illnesses and sicknesses through research.” – 31yo W,M

“I really feel like research being done really brings a lot of hope…of promising new discoveries [to impact the overall health of society].” – 32yo W,F

Societal value:

Inform health-related policy

“[research can inform] policy change…that helps the general health of everybody.” – 28yo W,F

“If someone didn't research something or try to attempt something, we wouldn't be as civilized as we are now.” – 28yo W,F

Societal value:

Altruism

“my overall want for doing research [is to]…benefit others who are going through…lung health issues…what can I do to help benefit other people? It's not about benefiting myself.” – 34yo W,F

  1. Abbreviations: API Asian or Pacific Islander, B Black, W White, F Female, M Male