Table 3 Institution and study team factors influencing research study participation

Institutional factor:

Integrity

“[less interest in] studies funded by certain companies or industries that might be a bit skewed, just based off of who is sponsoring them…[those] researchers don't necessarily want to say negative things because that's who's sponsoring and paying for their study.” – 33yo W,F

Institutional factor:

Privacy and confidentiality

“What are they doing with [my research data]…is it going to be kept confidential?” – 26yo B,F

Institutional factor:

Trusted reputation and local engagement

“I'd [want to hear about research studies] from a reliable source like…my work…[or] a community group that I'm involved with…just having the feeling that someone vetted it before they sent it to me.” – 32yo W,F

Study-team specific factor: Welcoming, accommodating, and communicative

“[it would motivate participation if] the research team…could explain to me what the study is about.” – 34yo W,F

“If I have to go digging and it’s not clear off the bat I’d be less likely to participate.” – W,F (age undisclosed)

“[I would] like to be updated on the results.” – 30yo W,M

“would be interesting to see how I helped form the study.” – 29yo W,F

Study-team specific factor: diversity of investigative team

“I would like to see diversity in the research team and the cohort.” – 30yo API/B,M

Study-team specific factor:

Sense of belonging

“it'd be cool to be a part of a participant group…and be a part of that little community. People are always wanting to kind of be involved in a community.” – 28yo W,F

“[I would be more likely to join a study if] I could do it with a friend…so we can talk to each other about our experiences as we’re doing it…that process [gives you] more support.” – 31yo W,F

“[I would be more likely to participate] if I had friends that were taking part in a research study.” – 26yo W,M