Table 3 Information needs of patients with interstitial lung disease by use of oxygen therapy

What procedures do physicians use to diagnose ILD^a

1

6.3

3

8.1

What tests are performed by physicians on patients with ILD^a

0

0.0

1

2.7

How the physician follows the progress of the patient with ILD^b

3

18.8

5

13.2

Drugs for ILD (selection, risks, and benefits)^a

3

18.8

5

9

24.3

Oxygen administration (indications, use, and insurance coverage)^a

1

6.3

2

5.4

Methods of exercise and their necessity^a

0

0.0

3

8.1

How to help patients cope with anxiety, depression, and panic^a

2

12.5

2

5.4

Disease progression and what to expect^a

1

9

56.3

1

18

48.6

Acute exacerbation of ILD (including vaccination and symptoms to watch for)^d

4

5

29.4

2

15

38.5

When and where to contact healthcare providers^b

3

5

31.3

4

10

26.3

Other medical illnesses associated with ILD^a

2

12.5

7

18.9

How acid reflux from the stomach relates to ILD^a

1

6.3

4

10.8

Choice of lung transplantation^a

1

6.3

1

2.7

End-of-life care and advanced directives^c

5

4

25.0

9

23.1

Studies in ILD^a

1

6.3

2

5.4

Basic pathophysiology of ILD^a

2

12.5

8

21.6

How to manage breathlessness, cough, and fatigue^c

2

7

43.8

3

13

33.3

Everyday matters of patients who need help from others^a

0

0.0

0

0.0

Patient associations and other support groups^a

0

0.0

0

0.0

Communication methods between patients and their families^a

1

6.3

1

2.7

Diet and nutrition^e

0

0.0

8

19.5

Care and support at home^c

1

6.3

4

10.3

Other^a

0

0.0

0

0.0