Table 4 Information needs of families of patients with interstitial lung disease by use of oxygen therapy

What procedures do physicians use to diagnose ILD^a

1

6.3

3

6.8

What tests are performed by physicians on patients with ILD^a

0

0.0

0

0.0

How the physician follows the progress of the patient with ILD^a

1

6.3

3

6.8

Drugs for ILD (selection, risks, and benefits)^a

2

12.5

8

18.2

Oxygen administration (indications, use, and insurance coverage)^d

2

12.5

6

13.0

Methods of exercise and their necessity^a

1

6.3

4

9.1

How to help patients cope with anxiety, depression, and panic^b

1

6.3

6

13.3

Disease progression and what to expect^b

1

10

62.5

1

28

62.2

Acute exacerbation of ILD (including vaccination and symptoms to watch for)^c

3

6

35.3

2

20

45.5

When and where to contact healthcare providers^a

1

6.3

7

15.9

Other medical illnesses associated with ILD^c

2

11.8

7

15.9

How acid reflux from the stomach relates to ILD^a

0

0.0

4

9.1

Choice of lung transplantation^a

3

18.8

2

4.5

End-of-life care and advanced directives^b

2

12.5

3

6.7

Studies in ILD^a

2

12.5

1

2.3

Basic pathophysiology of ILD^a

1

6.3

2

4.5

How to manage breathlessness, cough, and fatigue^b

2

6

37.5

3

15

33.3

Everyday matters of patients who need help from others^a

0

0.0

1

2.3

Patient associations and other support groups^a

0

0.0

0

0.0

Communication methods between patients and their families^a

0

0.0

1

2.3

Diet and nutrition^a

4

5

31.3

4

9

20.5

Care and support at home^a

5

4

25.0

4

9

20.5

Other^a

0

0.0

0

0.0